Only the Positive May Enter...All Else is Locked Out

For my followers on my Fibro Survivors United Facebook page, you all may have noticed that I do not post any of the hundreds of pictures and comments that reflect our pain, frustration, depression and fears. It is extremely difficult to do; allow only the positive to enter your life, to enter your mind. We are trained early on to always seek perfection, a better way. As we get older this turns into criticism of ourselves and others until all that is left is the negativity. War, hate, fear, self-loathing, lack of confidence and self-esteem.

Toss on top of this ever burdening load an invisible illness that causes chronic widespread pain throughout your entire body. Family and friends do not understand, doctors think you're faking, even conspiring to get ahold of the 'good' drugs for no other reason than to get high. You must fight to stay employed or fight for disability. We do deal with pain, anxiety, depression, insomnia, weight gain, migraines, loss, fear of the future. But what has concentrating on, talking about, and worrying about the negative aspects of my life ever gotten me but more of it?

It is a tough decision to decide that I will no longer allow all of the negative to walk through my door. I want to scream and yell at times to make others really see and hear my pain, but what would that accomplish? Their pity? If I cannot have an adult discussion on my diagnosis with them, and have them understand - is it worth it to keep fighting to try and force them to see me? The answer I finally came to - NO.

I have been reading and studying on the principles of the Law of Attraction. I have experimented with it. On small things that I would like...to test it. Everything I have put out into the Universe has come to me...as long as I only see the positive, and let it go. The principles are a bit trickier than that...but that is the jest of it. So there is something to all of it. It does work. Others say they have healed themselves through this process - doctors have called it a medical miracle. So what will it hurt to try?

My decision has led me to make some changes. I do not pay much attention to the news. Pain and hate is what sells and it is what the media likes to cram down all of our throats. So I say - no more. I no longer write about (complain about) my pain, frustrations, anger, etc. in my blogs or on my Facebook page, to my friends or my family. I no longer comment on or share any images or words that concentrate on the negative aspects of chronic pain. I only look for the positive information to share with myself and my readers.

This doesn't mean that all the ickyness of Fibro has vanished from my life in a magical poof of smoke and fairy dust (that would be very cool though), but I'm making progress. I try very hard (and I mean VERY hard) to stay on course. I meditate, do deep breathing, take long hot showers and Epson salt baths. I do yoga and get outside each day. I read fun books. I watch shows I like and keep my spirits up. And I write. I do not (try not) to discuss all the bad and icky of what I go through each and every day because the more concentration and time I put into the negative - according to the LOA - the more of it I will attract into my life.

I take my meds and see my doctors - I do not listen to them when they say I must accept my pain and that it will be with me for the rest of my life. What do they really know? Not much in the area of fibro...we've all found that out. So why listen to that? I choose not to. I research various methods, tips and tricks for helping and give them all a try. Some help, some don't. I'm trying to go with what works and just let all the rest go. It doesn't deserve my time and attention.

The negative people who have tried to stay in my life...no more. I am selfish because I love myself and I know better than any one else on this planet that I deserve happiness and joy. I deserve to feel good. I deserve a good nights sleep. I deserve anything and everything that I want for myself - and absolutely no one, no matter your level of education and how many initials you can place after your name, is going to be able to convince me of anything else!

So, I pass on all the images and sayings that increase my thoughts of pain and anything else negative in favor of the positive. Some days are easier than others, but I'm going to keep trying. I'm not going to beat myself up for forgetting this or that, or misplacing something or not meeting everyone else's expectations. I'm not going to let others have the control over me that they have had in the past - they cannot make me feel inferior or insignificant because of their own ignorance. I know exactly what I deal with each day and I don't need to discuss it at length with anyone except to update my doctor and keep my husband and kids updated on what my day is going to be (ie: I can do more today than yesterday...I need to take it easy today). I let my family and doctor know what I need without the complaining, crying, yelling and anger (ok, ok...I try VERY hard to do this).

Some might think this idea is stupid, ineffective or as one reader put it - to placate, but it gave her a really good laugh. We all have the right to our opinions but I've seen the difference a positive attitude and positive atmosphere have on a not very positive situation. There is just too much evidence that says there is something behind these principles to brush it aside. I do feel better on the days I'm able to stay more positive, and worse on my negative depressing days.

So this is what I'm doing, and this is why you won't find any negative imagery on my sites. I'll keep everyone posted on my progress.

♥ Gentle Hugs ♥

Life Lessons that Speak the Truth Through the Ages

There have been teachers and visionaries from the past whose words continue to hold meaning regardless of when they where originally spoken. It can become increasingly difficult in a world when we are expected to do more in less time to keep these basic life lessons in the forefront of our daily lives. We can fall into the trap of feeling like we have no control of our lives. That others have the power to dictate our present and future. We rush around trying to do as much as possible, blaming others for the negativity we allow them to force upon us. We make excuses for why we don't take care of ourselves and why we can't do anything to turn our lives around. When our life isn't working we continue to do the same things over and over again but wonder why our circumstances don't change. It's time to stop this cycle and really listen to what these teachers have to offer.  

Gandhi was born in 1869 and led India into independence. He inspired national movements of freedom across the world. His techniques were non-violent civil disobedience. Gandhi was one of the great teachers in this world, practicing what he preached in his daily life. When asked to give a message to the people his response would be, "My life is my message".  

Within the evolution of our society, we have lost these principles. It's time to reclaim our lives and regain our balance. These ten words of wisdom are as true today as they where in Gandhi's time: 

Be the change. There are many changes that we may want in our lives, but how often do we recognize that we are the ones that must first change in order for change to happen? We must do away with the thoughts that say the outside world must change before we can. We must be ambassadors to our own change; and as you shall will it, so shall it become. Calm your minds, figure out exactly what changes you want, then begin changing yourself so that you become the change you want. This could happen in small baby steps or large strides, but the how's do not matter. Just do it. See it in your minds eye and become it. Visualize your change and feel it. One day you will wake up and realize your change has already happened. 

What you think you become. This is powerful. It goes back to the Law of Attraction. If you constantly think you're broke, you probably are. If you always believe that others are out to get you at work and sabotage your efforts, that is all you will see. Now this isn't to say that I can simply concentrate on having a million dollars in my bank account and then it will mysteriously appear without any effort on my part beyond visualization. No no. You need to go back to the first word of wisdom "Be the change". If you do not put any effort into what you wish to become, sitting around and waiting for the knock on the door will never happen. Our minds do not know reality from imaginary. So if you are constantly depressed and think you will accomplish nothing in life, you most likely won't. But if you have a positive outlook, think and feel that you can accomplish what you want, and actively be the change you want; nothing can stop you. The right people will appear in your life with the kinds of opportunities you need to further your goals. Attitude is everything. 

Where there is love there is life. Love truly is the key to everything. We need to come to a realization that it does not matter our sex, orientation, color, nationality or religious/spiritual beliefs. We are all connected by nature and nature is the purest form of love. We are all living beings with hearts and souls. We feel pain and heart ache, we feel love and sadness, we feel sorrow and empathy. We are one. Our differences are what make up the beauty of this world we live on. I wouldn't want a world where everyone was the same, that would be far too boring. Our world is like a beautiful quilt with billions of different patches and patterns, colors and designs; all sown together into this patchwork layer that blankets the earth. What more love and beauty could you hope for? So the next time someone lashes out, share some of your love with them because they are the ones that need it the most. Be the change you wish to see in others, and they will eventually follow. They won't be able to help themselves. 

Learn as if you'll live forever. We as human beings are in a constant state of learning, but many of us believe that once the degree is awarded that learning ceases and you know all there is to know. This is a fallacy that will come back to bite you. There is always something new to learn, in and out of the classroom. We are all in a constant state of growth and evolution, even though our bodies age and we eventually pass on to what ever comes next, that is no excuse to cut yourself off from the beauty of knowledge. Many cultures believe in an afterlife or rebirth; wouldn't you need as much knowledge as possible when you pass on to your next existence?  

Your health is your real wealth. Not how many hours you put into your work week, or how much money you have accumulated. Not how large a home you live in or how flashy a car you drive, none of these things show true wealth. Our emotional, physical and spiritual health are our real wealth indicators. You can have all the objects in the world, but be miserable. You can live in an impoverished community and be amazingly happy and content. It has everything to do with how you take care of yourself. If your emotional, physical and spiritual needs are met you can see everything else for what it is, just things. They may hold memories, but memories are ours forever even when the things no longer exist. Take care of yourself and all else will naturally fall into place. 

Have a sense of humor. Life is about joy and love. Mistakes can and will happen along the way. Hurts will come your way; they are all a part of the life experience in our journey through our evolution. We can learn far more from our mistakes and hurts than by our successes. Our mistakes and hurts will lead us to our success if we look and see them as stepping stones along the way. We never fail, we simply learn lessons so we can do things differently the next time. But in all of this, we must have a sense of humor about it. This will keep us from delving too deeply into the mistake or hurt, only causing more mistakes and hurts to come our way. We see them, learn from them, laugh at them, and move on to the next. 

Your life is your message. It's all fine to sit up on a high horse and preach these ideals, but to teach them and live them simultaneously is to be a true teacher of wisdom. To see life through those eyes is something I strive for each and every day. To see love in everything and everyone, to keep these ideals in my life each day, that to me would be true peace. There have been and continue to be too many men and women who preach and scream the words of God or some other prophet, or savior, or gods/goddesses but loose sight of everything in their own daily lives. They become contradictory to all they say they believe in. This is no life to live. Only once you can begin to live your message can you find the inner peace we as humans strive for so much. 

Action expresses priorities. You may say your child comes first, but work late and are never home for dinner all in the name of the almighty dollar. So your child suffers because they need to see you more often. You can't let go of the past hurts and work our your differences with your ex, so your ex is never allowed visitation because you feel it is in the best interest of your child. But your child suffers because they are unable to see both of their loving parents. Your actions express your priorities. In the first, money is more important than quality time. In the second, hurting your ex is more important than the emotional and psychological needs of the child. These people may make excuses to make themselves feel better about what they are doing, but their priorities are warped and unhealthy. In both cases the priority of both parents is probably to do what is right for their child, but their actions contradict everything they are telling themselves. And in both cases and innocent child suffers for it. Really think about your priorities from all points of view. Ask questions, get some advice, and really make the effort to put aside your personal hurts or mistakes and insure your actions are true to your priorities. Don't judge yourself, just learn from it and move forward in your journey. 

Our greatness is in being able to remake ourselves. It is never too late to change our thought process, our diet, our emotional, physical or spiritual health. The point is to learn from our mistakes and hurts. Stop blaming others for all that has been done or said. Take your power back, you are the only one who should be in control of your power. We must see these mistakes and hurts as lessons and challenges on our evolutionary journey. People and circumstances come into our lives to help us learn. Some people are meant to stay longer than others. So the next time you experience anything that isn't comfortable, that makes you upset, sad or angry, try to see what lesson you need to learn from this. How can you be the change so this won't happen again. Make the change, step by step, and remake yourself into the greatness you are meant to be. 

Find yourself in the service of others. You get what you give in this world, this is the natural law. We are meant to experience love and joy in our lives. We can have both by offering of ourselves to others. I'm not saying we all need to dig into our pockets and try to donate to every cause that comes to our door, but what else can you offer? Your time? Your lightly used goods that you'll never wear or use again? Can you carry a case of bottled water in your car and hand these out to the homeless you see asking for handouts along the roadside? Pay it forward. Make an extra sandwich and give it to a homeless person who you see all the time. Help when and where you can. This is the actions of a wise and great person. 

These words of wisdom, these ideals can be difficult to hold close to you when life's frustrations come knocking at your door. Work, kids, carpool, soccer practice, what to make for dinner tonight, someone cutting you off in traffic - the list can go on and on. Striving for these wisdoms doesn't mean that you get to a place where you never experience any of these frustrations and anger, but that you take a much different path in dealing with them. Take enough time to think before you react to situations. Make sure that the things you do in all aspects of your life are holding true to your ideals. If they're not, there's no need to beat yourself up. Just take a deep breath, rethink it, see how you can be the change for the future and move forward. Even the greatest and wisest of teachers had to learn these steps, even they messed up. It gets better over time. You just need to trust in yourself that no matter what obstacles stand in your way you will make it. Love yourself and everything else will fall into place. 

Published on Yahoo!Voices: http://voices.yahoo.com/life-lessons-speak-truth-through-ages-12227430.html

The Wisdom of Forgiveness and Your Health

Have you ever allowed another person's actions to dictate your emotions? Are you angry and bitter every time you think of someone who has wronged you? If so, you're human but also probably living a more stressful and unhealthy life than you need to be. The problem with allowing others to control our emotions is that we cannot control what others do. If someone doesn't live up to our standards and expectations we allow them to destroy our happiness. We think that they have to do something in order to allow us to move forward. This leads to resentment, bitterness and physical and mental health issues. Who wants to live this way? I know I didn't, but realized that that was exactly what I was doing in my first marriage.

It certainly did not happen over night, but it happened. One day I woke up and realized I had given all of my power away. My life was no longer my own. Well, that had to stop. It took time and help from a counselor to rebuild my confidence in myself and take control of my life and my emotions. My marriage didn't survive, but although I contributed my share of mistakes that eventually ended our marriage, so did my ex-husband. And I've come to realize that holding onto all of the lies and betrayals, the unanswered questions and hurts is a waste of time. It does nothing to change the past and only keeps me in that unhealthy place. I would still be allowing him to control my happiness.

I know I'll never get the answers I would like about how our marriage turned out the way it did, and that's okay. I don't require these answers to move forward, to live my life, to raise my son, to find love again, to be happy. I can move on in spite of my past. If you're in a similar place in your life here are a few things that can help you find a healthier path:

1) Talk to someone.
It's hard to let go of past hurts. It doesn't make you a weak person if you ask for help. Friends and family can often times only fuel your anger, having a third party who can give you realistic goals and objectives to help you through the situation can be invaluable.

2) Write it out .
Write it all down, uncensored and raw. Don't hold back. Say everything you wish you could say, ask all the questions, tell them off; what ever you feel like writing. And when you're done, burn it and let it go. Don't let someone else have your power, they're never worth it.

3) Forgive.
Not for them, but for yourself. Forgiveness doesn't mean that what the person did was okay, it means that you have it within yourself to move on and have a happy, healthy life.

Forgiveness is a powerful tool, but it does take time to get to that place. However, the more you practice forgiveness in your life the easier it becomes. I think we have been taught by society that forgiveness means it's alright. That who ever has hurt us can just get away with what they have done . The reality of the situation is that no one gets away with the wrongs and hurts they have perpetuated onto others. There are lessons to be learned and if the other person continues in their negative behavior they will only attract this negativity back into their lives. So find peace in letting go of the hurt and forgiving in order to continue on your own path.

Published by Yahoo!Voices: http://voices.yahoo.com/the-wisdom-forgiveness-health-12220600.html

Guilty until proven innocent...

I am being censored; guilty until proven innocent. Because of this I have had to remove all personal writings from my blogs and other social media. This is extremely unfortunate and absurd in my opinion that if I have a difficult day, and rather than take it out on those around me, I chose to use writing as a therapeutic form of venting and releasing my frustrations and feelings, I will now have this used against me as if I were some oddity or freak of nature. Because no one else on this planet ever has a bad day, no one else ever has events occur in their lives that makes them feel depressed or angry. So this is what it comes down to. Only my professional writing will appear on my blog from this point forward. There are some people in the world who truly need to grow up and take a hefty dose of reality. Rather than looking for a reason to hate others and cause pain, why not attempt some empathy for once...

Keeping the faith with chronic pain

When diagnosed with a chronic illness a piece of you begins to shrivel and die. How could this be, why is this happening to me? Our faith in ourselves and our gods are shaken to the core. We can find ourselves spirally into depression and anxiety. We can't breathe. Anger is an easy emotion to turn to. Why has the Goddess turned Her back on me? What have I done to deserve this kind of karmic backlash?

You struggle to find the right doctors and specialists, the right treatment program, educating yourself, friends and family; not to mention the fight for benefits and whether you'll be able to continue to work. This alone could drive the strongest and healthiest of individuals into depression and absolute frustration. You need to have an advocate to turn to, to put your faith in. That's when we turn to our alter, light a candle, and ask the impossible question; why me?

If living in my pagan path has taught me nothing else, it is that we are given these challenges because we are strong enough. And there is a valuable lesson to be gleaned from it all. I can say with absolute certainty, from my own personal experience, that we don't feel strong enough in the beginning. Anything but. It takes time. For many, we have to grieve and mourn the lose of our former selves. Ritual and meditation is a wonderful place to start.

Meditate on who you saw yourself before - then on who you are in the present moment. Mentally light the fire on the pyre of your dead self, send her/him to the Lady. Then right down everything that has and will be changing in your life. How it makes you feel. What you plan to do about them. What you'd like to do about them. Cry. Scream at this paper; this symbol of what was. Then burn it. Watch it as the paper curls and blackens, flaking off to be carried away on a breeze. Watch the smoke rise steadily upwards to the gods. They hear you. They see you. Now take three long, cleansing breaths and just let yourself feel your body for a moment. It's much more difficult than you first think it is.

Sit with your pain. Feel it. And slowly, with time you can begin to accept it. This ritual can be done multiple times and for multiple reasons. Keep doing it as often as you need, but make a point to practice your deep breathing and let your self sit and feel your pain on a regular basis. Light candles and incense, cast your circle, invite the quarters, God/Goddess, and any other positive energies you wish. This takes time and can be painful in the beginning. Let the God/Goddess be with you during this time. Feel their energy holding you up and supporting you during this process. You would not have been given this challenge if you were not strong enough for it.

Buddhists call it Radical Acceptance. Well, I'll tell you that the first time my therapist suggested this to me, I thought maybe she was the one who had lost her mind. Maybe we should switch places and have a little chat about this. But, the more she explained it, the more sense it finally started to make for me. This "sitting with your pain and accepting it", has nothing to do with giving up. You feel your pain, and you accept that in this moment in time, this is simply how it is. Nothing more, nothing less. You accept that your doctors have diagnosed you, you are working on a treatment plan which you will follow through implicitly, and that you will continue to look, to research, to speak to your doctors about your health on a more regular basis. As aptly put by Tara Brach in her article, The Power of Radical Acceptance: Healing Trauma though the Integration of Buddhist Meditation and Psychotherapy, "which means clearly recognizing what we are feeling in the present moment and regarding that experience with compassion. I see over and over that Radical Acceptance is the gateway to healing wounds and spiritual transformation. When we can meet our experience with Radical Acceptance, we discover the wholeness, wisdom and love that are our deepest nature."

My diagnosis was a blessing of sorts. I cannot say that I'm completely accepting of my current life, because I struggle with these concepts every day, but with this health challenge I have been able to spend more time on myself and my health. I'm there for my son in ways that I couldn't be while I was working full time. Don't get me wrong, I loved my career, but this has changed my priorities. Made me take a long, hard look at what I really want to do. Writing, art, photography; these are the things I've been wanting to do but have always pushed them aside because I never made time for them. Now may be the time to stop pushing them away and embrace them as I work towards my own radical acceptance. Discover my wholeness, regard myself with love and compassion. Allow myself the opportunity to fully embrace my gods and what they have to teach me. There is a lesson to be learned within chronic illness, and each of us have been given the opportunity to find it, embrace it, and find a deeper connection with our chosen gods. I wish all of  you the brightest of blessings in your journey with chronic illness.

Caleen Martin


Radical Acceptance Article Refrences
http://www.tarabrach.com/articles/trauma.html
http://www.psychologytoday.com/blog/real-healing/201101/radical-acceptance

Live in the now...plan for the...

I read an article today that really made me think about the differences I've gone through from an healthy person, to one with sickness (http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/). I took so much for granted before I was diagnosed with FM. We all do. Every task has so many steps that we don't even think about. We need to decide each day; will I clean or will I eat, if I have to drive my son to school, what do I have to give up? We do what is of upmost importance, and the rest just has to wait until another day. And the article is right, when we spend time with friend or family, you're given a gift because we chose you as one of our utmost important things that day. We gave you a piece of ourselves just to be around you. That means a lot for us.

Pre-FM I thought a lot about the future; my future career, car, home, family, relationships, etc., etc., etc. But now - I look around my home and all I see is so much unnecessary stuff. Just things that are absolutely meaningless. I want uncomplicated and simple; it makes my day's easier that way. And now, I think more of the now then I do the future. Don't get me wrong, I do make financial plans regarding the future because that's just smart planning, but my life is now in the present. I can't live in the "what will be". I can only live in the now, because I don't know what my tomorrow will be.

Will I be able to walk? Will I be able to see? Will my pain leave me bed ridden? Could I end up with additional medical conditions that will complicate everything I'm already going through? The answer to all of these questions is most likely yes. I don't know how much longer I'll have to be able to get up and take care of my son, I don't know if my eyes are going to continue to blur to the point that I can no longer see. I don't know if my pain levels will continue to increase as they have been over the past few weeks. None of these are good signs, so I need to be especially grateful for each and every little thing I have in the now. Not in the future...just right this second. Because I have no idea if this is the last second I may have.

I'm not trying to be pessimistic or scare my family and friends, I'm just being realistic. I have a condition that in most will continue to progress and gets worse over time. So in order to prepare for the future, I need to live, NOW.

It bothers me when old friends say they will keep in touch and don't. Say they will call and don't. I miss them, but I don't have the energy to go to them. I can't give my half to a relationship any more...and that really bothers me. I don't know what to do about it.

I'm not saying that planning for the future is pointless, because it really isn't. I guess what I'm saying is that the next time you think about all the great things you'll do/see/be in the future...step back and think about all the great things you do, you see, and you are, right now. Because in the end, that is what really counts.

Communication and Chronic Pain

 

 

At its most basic explanation, chronic pain comes from stress. Stress on our minds, psychological and stress on our bodies, neurological. Combined, we can have excruciating chronic pain throughout our bodies. Many individuals who suffer from chronic pain or other debilitating chronic illnesses are lucky to have family, friends or a partner who understands their medical condition and the physical aspects of the illness; but how many really understand the importance of the psychological aspect? For that matter, how many sufferers of these varied illnesses understand just how much psychological stress impacts their daily health? We've all probably been told that stress can affect our health when we think about stroke and heart attack. But have any of the many, many doctors out there treating chronic pain sufferers included "communication education" on the prescription pad or as part of their physical therapy must do's?

 

Does your family or partner, friends or co-workers make ignorant and many times cruel remarks out of frustration? Do you burst into tears or say cruel things right back at them? My pre-fibro career was in communications, I like to think I can be reasonable. Not so much. Especially with the ever present mood swings that like to sneak up on me like a nasty little ninja, pouncing when I least expect it. My husband studies psychology, he should know better...right? It's so much easier to dole out the advice than take it. And I mean for both of us. I can't blame all communication road blocks on others, no matter how wrong I think they're being. I need to also take responsibility for my own words and reactions.

 

I believe this is true for all of us who find ourselves in these situations. How many of us have had a particularly nasty, stressful argument and within a day have an intense flare up leaving you in agony? Probably too many of us. Communication will make or break each and every relationship we have throughout our lives. So why aren't we taking it more seriously? My doctors have never mentioned anything on communication skills. I see hundreds of comments from sufferers trying to figure out how to deal with family and partners who are emotionally indifferent or at times abusive towards them. Suggestions include having them read comments on the various online support groups, leaving fibro pamphlets laying around the house, have them talk to your doctor at your next appointment; nothing in there about taking a communications course.

 

We, the sufferers of chronic pain, should be first in line for this. Not because we must be recluses who have no idea how to talk to other human beings, but this is difficult. Trying to express our feelings and needs, educate those we care about on our illness, and how to stay calm when we realize our loved ones are talking out of frustration rather than any true desire to hurt us. This is hard work and we can use all the help we can get. That is exactly why these kinds of courses exist, to help us all do a better job of communicating so we can keep the relationships we want in one piece, and be confident in letting go of those we don't need in our lives. They're as much about self-esteem and self-confidence as they are communication, and sometimes having the information come from an unbiased third party makes it more acceptable. I know I'm going to be going back through the ones I've taken in the past; of course, I'm blaming my fibro induced memory loss for the fact that I haven't exactly been using these techniques with my husband. That's my story, and I'm sticking with it.

 

Can you imagine what it would be like to have open, clear and relaxed communication with your loved ones? To have a clear system for acknowledging each others needs. How many flare ups would never have happened if this was how it was from the start? How much easier would it be to handle the daily pain without having to worry about fighting and arguing with your partner or kids? Not that there will never be a disagreement, but there are healthy ways of working through them, and then there's the way we've been doing it. And in the illustrious words of Dr. Phil, "How's that workin for ya?" On the flip side, how much will it mean to your partner, kids, loved ones, friends, co-workers? It could literally be the difference of being a victim of chronic illness, or a survivor of chronic illness.

 

It doesn't have to cost a fortune, although the information is priceless. College's certainly offer shortened and full semester courses if you want to go that route, but your therapist might have a number of good options for you as well. I was introduced to these courses through my career. One to two day workshops in communications that can be used in any atmosphere and relationship. A number of them are even on DVD so you and your partner can listen to them together at home, stop them, talk about it, and keep working through it. The DVD's also make it easy to go back and relearn what our medical memory loss has whipped out of our foggy brains.

 

So, everyone close your eyes and picture yourself at home, your loved one(s) around you. But rather than the typical tension in the air, tears or angry looks see everyone with peaceful faces, calm voices, and peace. Take a few deep breaths while imagining this new home, see it as if it is already like that. Feel how you'll really feel. Now take one last deep breath, open your eyes, and take the first step to making that vision your reality. But until then, take a note from above: before you speak, is it true, is it kind, is it necessary. If you can't say yes to all three, don't say it.

 

Here are some ideas to get you started:

CareerTrack* (www.careertrack.com) - used for professionals, but the same techniques can be used in any relationship. They offer workshops all over the country and dvd's of the workshops. There are a ton to choose from on all kinds of topics that could apply to your situation. (The two I've done: Assertive Communication Skills / Self-Discipline & Emotional)

 

Fred Pryor* (www.pryor.com) - I highly recommend Pryor seminars, they have the best speakers.

 

*If you are looking to purchase the dvd's, try looking them up on amazon.com. You can find more affordable options.

 

The remaining list is just some I've found online. I don't endorse any of these because I've never used them personally.

http://www.realhope.com/free_tips.php

http://well.wvu.edu/articles/the_language_of_love__communication_skills_for_couples

http://www.jdmcounselor.com/communication_skills_for_couples.html

http://health.howstuffworks.com/relationships/advice/communication-skills-for-lifelong-relationships.htm

 

And if you think about it the next time you're at a doctors appointment, have a discussion with him/her on this topic. Educate them on its importance so they can educate their other patients. Happy communicating, take the first step, make it happen.



The Ivory Castle

I'm not going to say how long ago I wrote this, because it's slightly depressing, but this is my first narrative essay which I wrote in my early college years. I like the story and am hoping to one day turn it into more than a short story. So, here you go...

From the balcony, Jennifer Waters watches anxiously as people enter the New York City Art Gallery. She listens to the buzzing of voices down below.
"Who is the artist?"
"Has anyone met her?"
"Has anyone seen her work?"

Jen snuck into the gallery earlier that day to make sure everything was in place. The first part of her exhibit was placed on a black pedestal in the center of the room, and uncovered for the public to see. The second part of her exhibit, the photographs, were arranged along the four walls, and hidden behind heavy black velvet curtains. The balcony, circling the entire room, would give her the perfect spot to observe everyone entering the gallery without being seen. Now, all Jen had to do was wait for the gallery to open their doors.

Already a crowd has gathered around the center attraction, the ivory castle. Standing almost two feet high it looks as if it came straight out of a medieval fairytale. A gothic castle carved from one of the largest pieces of pure, snow-white ivory ever seen. It is as smooth as glass, and so fragile that the softest touch will shatter it into a million pieces. Every tower, every stone carved wit such precision it must have take the artist a lifetime to create. A work of art, so extraordinary mere words can not describe it, towering above the awestruck onlookers from its pedestal. How any one person was able to create anything so exquisite is beyond imagination to those looking upon it.
"What a spectacular piece of art!"
"It's the most exquisite work I've ever seen."
"I wonder if it's for sale?"
"It would make the most wonderful conversation piece in our home."
"How much do you think it's worth?"

"If only they knew what it took to get it here," Jen thought. "The government papers and regulations, trying to convince the US Government to allow ivory into the country is no small feat. They'll find out soon enough." She was warned that such a drastic move might not go over well with the public, but it is a risk she knows she has to take. They may be shocked, but once they see and hear what she has to say they will understand.

Everything is going exactly as Jen hoped. Those gathered in the front gallery are mesmerized with the ivory castle, unable to take their eyes from this masterpiece of pure perfection, but like every castle with its magnificent architecture and lush gardens comes a dark secret lying hidden from within its walls.

The crowd forming below is anxious to meet this mysterious artist. As frightened as Jen is feeling about what their reaction will be to her exhibit she knows she must do this. Nothing will change without their help. The atrocities and murders being committed will continue unless someone opens the publics' eyes to the truth.

She slowly descends the stairs as the faces below turn towards her. All eyes are on her as she clears her throat, takes a deep breath, and begins to speak. "Hello, I thank each and every one of you for coming tonight. My name is Jennifer Waters, and I'm the artist everyone has been talking about."

The crowd begins to applaud. "I hope they're still applauding with this is over," she thinks. As the crowd settles down Jen continues.

"I am a wildlife photographer, and have just returned to the states from a one year expedition in Africa. I was drawn there for the opportunity to study the wildlife and culture. It was one of the most rewarding experiences of my life, but it was also one of the most devastating and eye opening experiences I have ever had. I, probably like many of you here tonight, was unaware of the poaching that's even now running ramped in many parts of Africa, and this is what has motivated me to put together this exhibit. I ask two things from all of you here tonight, first, take a long, hard look at the ivory castle, and think of what it represents to each of you. It's a priceless work of art, and I would like to thank everyone who assisted me in obtaining it as part of my exhibit. The second, is that if after seeing the photographs you are as moved as I have been, please take a few minutes to look over the literature being passed out. Now, if I can have the curtains opened."

On queue the curtains are drawn back and the photographs reveal themselves. Gasps come from among the crowd as Jen stands silently at the foot of the stairs, for what meets their eyes is death. Along all four walls are photographs of animals that have been brutally murdered for their ivory, the glassy eyes of once majestic creatures starring back at them. African elephants and rhinos, once free to roam the earth, are now forced to flee for their lives. Merciless, bloodthirsty men with only dollar signs in their hearts stalk these creatures until one can be singled out from the herd. Cornered, the animal tries to fight for its life, thrashing and stomping trying to find an escape. The men maliciously move in, spearing and shooting the defenseless creature as it screams in agony for help. As the animal becomes weak from loss of blood their tusks and horns are viciously torn and chopped from their bodies wile they are still alive. They are then left in a pool of their own blood to die a slow and agonizing death. The men who are capable of such malicious acts of brutality sell the ivory to the highest bidder, so it can then be resold to the public. Anyone purchasing even the smallest piece is guilty of contributing to the continuance of this viscous, inhumane act of murder.

There is complete silence in the room as small groups gather before each picture, slowly moving from one to another. Jen watches each of their faces. Some are angry as if they want to scream at the top of their lungs at the injustices of the world. Others have tears slowly running down their faces, but in the eyes of each person is the look Jen was hoping for, the same look that was in her eyes when she knew she would dedicate her life to stopping the senseless murders of these beautiful creatures.

Jen slowly walks to the front of the crowd, "I realize that these photographs are extremely disturbing, but nothing any of you see here can compare to being there, to actually seeing these animals, their lifeless bodies laying before you. The rancid smell of death and decay assailing your nostrils, the sound of vultures overhead waiting to flock in for a free meal, even the strongest of men become ill. It's beyond any emotion any of you have ever felt before. It's now my life's work to do anything and everything I can to stop this, and that's why all of you are here tonight. I need your help. The public must be aware of what is going on even as we speak. As more people become aware, the sale of ivory will drop, and once there is no longer a market for illegal ivory sales the poaching will stop. Become aware. Become involved. Make the choice of life, not death."

A few hours later, as the crowd slowly files out of the gallery no one could bring themselves to look upon the ivory castle, a memorial to so many slain animals. A few hours later, as Jen walks out of the gallery to her car a single tear runs down her face, knowing the first battle of a very long war has been won.

___________________________________________________________________________________

Although the story is a work of fiction, the description of how the poachers kill these animals is accurate. It takes too long to actually kill them, so they hack at them and shoot them until they are too weak from blood lose to move or fight back. It breaks my heart to think there are actual human beings in this world who are capable of this level of brutality. But there are. If you are interested in learning more on this subject, below are a few links.
http://mg.co.za/article/2013-03-07-25-000-elephants-poached-in-africa-1
http://wwf.panda.org/what_we_do/endangered_species/rhinoceros/african_rhinos/poaching_crisis_african_rhinos/
http://www.bbc.co.uk/news/world-africa-21018429

Mourning your lost life...becoming a survivor

When sat down by a doctor and explained that you have an incurable medical condition that could become completely debilitating to you, cause you daily pain, and change every aspect of your life. You die. Your physical life has died, your career has died, your ability to care for your family has died, your ability to enjoy the intimacy between yourself and your partner, has died. But your lungs still breath air, your heart still pumps, and you must create a completely new life in spite of your medical conditions. If you're lucky you have a good medical team to assist you with changes regarding your health and what you need to do to really take care of yourself, but many of us don't get that. And the fight begins, to find the right doctors, therapists, friends and family to make up our new support system.

This journey into this new, strange and painful life is fraught with challenges. Trying to get our friends and family to understand what we are going through; and trying to understand it ourselves. Trying to find doctors who will help us. Trying to work, take care of a home, be there for our family, still be a friend, hobbies, interests...and lets try to do all of this while your body is literally spiraling out of control. This journey isn't easy, depression and anxieties set in. We turn in on ourselves. We stop doing all the things we used to love. We turn away from those who care about us and need us. Our pain grows. Each day is filled with challenges that we can't understand, we are tired of facing, and we just want it to stop. We lose everything from our old lives. We need to mourn our old self. That person no longer exists, and that person isn't going to come back. That person died the moment the symptoms started to affect your daily life.

You need a way to mourn the lose of that person you used to be. Psychologists say there are steps in the grieving process. There are no rules to grief, no steps or stages except our personal journeys which are unique to only ourselves. It will take us as long as it takes us. But at some point we need to let go. We need to live in the present and leave the past where it is...in the past. Perform a memorial service for your old self, set up an alter, write a letter of everything you feel about your old self - and burn it. Give yourself permission to scream and cry; gut wrenching and messy. Do it, do something, just do it.

There has to be a life waiting for each of us after fibro. I honestly believe that the challenges and trials we face in our lives are for a reason. There is something that we must do. Research and find the perfect doctor, reach out to others, set up an organization that helps fundraise for research, work on education of the public or maybe just your friends or family. It doesn't necessarily have to reach a large nationwide audience, but there has to be something. We never know how we are going to really affect those that come into our lives through blood or choice.

We need to embrace our new normality. Stop being afraid to ask for help. And be grateful for each and every little thing we have in our lives because there is always someone out there who has it worse. We are blessed for all of the things we have in our lives; we need to concentrate on those. Meditate on them. Find what you need to help put your body in a state of peace: cold/hot packs, aromatherapy, water therapy, acupuncture, medications, music, yoga, meditation, deep breathing. The options are truly limitless, we just need to find what fits us. What works for us.

We cannot allow fibromyalgia to become our identity. We are so much more than that. Its just one piece of our puzzle. Yes, we suffer from fibro, but we are also parents, children, grandchildren, partners, lovers, friends, co-workers, educators...fibro is not the end all, be all of our existence. We cannot let fibromyalgia run us over and take our lives away from us, we are not the victim of fibro...we are the survivors of fibro. We need to remember this. Every day that we wake in the morning, put a note on your nightstand or on the bathroom mirror so you'll see it first thing in the morning. I am a survivor!

This journey into this new, strange and painful life is fraught with challenges. Trying to get our friends and family to understand what we are going through; and trying to understand it ourselves. Trying to find doctors who will help us. Trying to work, take care of a home, be there for our family, still be a friend, hobbies, interests...and lets try to do all of this while your body is literally spiraling out of control. This journey isn't easy, depression and anxieties set in. We turn in on ourselves. We stop doing all the things we used to love. We turn away from those who care about us and need us. Our pain grows. Each day is filled with challenges that we can't understand, we are tired of facing, and we just want it to stop. We lose everything from our old lives. We need to mourn our old self. That person no longer exists, and that person isn't going to come back. That person died the moment the symptoms started to affect your daily life.

You need a way to mourn the lose of that person you used to be. Psychologists say there are steps in the grieving process. There are no rules to grief, no steps or stages except our personal journeys which are unique to only ourselves. It will take us as long as it takes us. But at some point we need to let go. We need to live in the present and leave the past where it is...in the past. Perform a memorial service for your old self, set up an alter, write a letter of everything you feel about your old self - and burn it. Give yourself permission to scream and cry; gut wrenching and messy. Do it, do something, just do it.

There has to be a life waiting for each of us after fibro. I honestly believe that the challenges and trials we face in our lives are for a reason. There is something that we must do. Research and find the perfect doctor, reach out to others, set up an organization that helps fundraise for research, work on education of the public or maybe just your friends or family. It doesn't necessarily have to reach a large nationwide audience, but there has to be something. We never know how we are going to really affect those that come into our lives through blood or choice.

We need to embrace our new normality. Stop being afraid to ask for help. And be grateful for each and every little thing we have in our lives because there is always someone out there who has it worse. We are blessed for all of the things we have in our lives; we need to concentrate on those. Meditate on them. Find what you need to help put your body in a state of peace: cold/hot packs, aromatherapy, water therapy, acupuncture, medications, music, yoga, meditation, deep breathing. The options are truly limitless, we just need to find what fits us. What works for us.

We cannot allow fibromyalgia to become our identity. We are so much more than that. Its just one piece of our puzzle. Yes, we suffer from fibro, but we are also parents, children, grandchildren, partners, lovers, friends, co-workers, educators...fibro is not the end all, be all of our existence. We cannot let fibromyalgia run us over and take our lives away from us, we are not the victim of fibro...we are the survivors of fibro. We need to remember this. Every day that we wake in the morning, put a note on your nightstand or on the bathroom mirror so you'll see it first thing in the morning. I am a survivor!

Is god a bigot?

I've studied different religions for years and one belief always confounds me, regardless of the specific faith, that god has only one "true" path. I don't personally understand it. Individuals have been recorded in history as having enlightened religious experiences from literally every faith in existence; whether it appeared as a dream, vision, near death experience, the voice of "God", you name it, someone has claimed to have experienced it. So how can there be only one way, one path, one face, one gender, one name when so many from so many belief systems have had such life changing experiences?

I look at the words used to describe "God" and can only think that this isn't a god I want anything to do with. Jealous, vengeful, but also loving and kind? If I were to describe a human being like that they'd be considered abusive and in need of serious psychological evaluation and treatment. And where do we get this character description? From religious texts written by other human beings long since dead, and hundreds of years after supposed events occurred.

We have learned that any text that has survived throughout history was written by the "winners". We never get to hear the stories of those who didn't win the war. So why is it that so many people can take the words written in religious texts as absolute truth? We know nothing about these individuals except what we've found. I'm certainly not saying that the authors of religious texts are all lying, but we need to realize that regardless of the intention all humans have individual feelings, opinions, and personal agendas which are always reflected in our writing. It makes no difference if the words are in a blog or religious book, they are only an individuals interpretation and personal beliefs.

I can't believe for a second that the amount of death and destruction that has been wrought by human beings in their attempt to forcibly convince the world that there way is the only way is what any Divine creator would want. We always hear the phrase "look at the larger picture", well, religion needs to do the same. Is it so inconceivable that god foresaw that humans would be amazingly diverse? That we would have so many beautiful and varied cultures and beliefs that one faith simply won't fit everyone? And that god created all religions, so that in our diversity we could find the path that truly spoke to our individual hearts and souls?

All belief systems hold a set of basic beliefs and "rules" to live by, and if one looks closely we will see that they all say the same things; treat others as you would be treated. This sentiment is put in numerous ways, but it really all comes down to this. Over the years humans have added some more colorful and unusual rules like what kind of food to eat/drink, type of clothes to wear, how and where to communicate with god and so on, but I believe all of these where just others who wanted to force their own opinions over those of their faith. We see it all the time, power hungry individuals who will say or do anything to get others to do as they say. It happens today, and it happened hundreds of years ago.

We all need to stop viewing religion as a one way street, but a beautiful map with numerous paths all leading us to our creator. Forcing your personal beliefs down the throats of others will never work, and trying to convince the world that "God" can only by found one way only shows that we have a long way to go to overcome such religious bigotry. Humans can be racist and a bigot, but god never was and never will be.